Virginia Mason just called to make an appointment for Larissa to see a neurologist. We are going TODAY at 1:30, prayers appreciated. This will be the second round of seeing an Infectious disease Doc followed by a Neurologist (the first time was 2 yrs ago in Bangkok)
This appointment was incredibly discouraging for Larissa. The Neurologist found a small spot in the middle of Larissa's brain but felt it couldn't be causing the pain and fatigue. The Doctor presented a pretty strong case for this being Chronic Fatigue Syndrome. Since CFS is long lasting and has no cure this was hard to take. Larissa's quality of life is so low that thinking of her being in this condition for years is not something any of us wants to face. However the Doctor told Larissa she could improve her quality of life by trying to be more active.
Here's the problem...Larissa spent the next week trying to be more active and the result was an increase in fatigue, more severe headaches, weigh loss and nauseousness. We need to find a way to improve her health without her just getting sicker.
praying for laris, and all of you guys. sending love from AZ
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